Tag Archives: disability

The Other Side of Abortion

Pro-choice activists have long argued that abortion should be available on demand, and without apology. I am one of them, and I agree with that. But sometimes, things happen to those close to you that make you realise how complex and at times, awful, this can be when it’s translated into a specific set of circumstances in reality.

Someone close to me is currently pregnant and has found that there is likely (to be confirmed soon) complications with the brain development which mean that the baby would have very very serious disability* when born. Depending on the degree of this damage, the doctors are likely going to recommend termination. She is more than 30 weeks pregnant, and her and her partner want this baby very very much.

Of course, abortion isn’t the problem here – it didn’t create the developmental issues that are the cause of her anguish. But the fact that her and her partner have a choice to make is absolutely heartbreaking. What a choice to try to make.

Disability rights activists have long argued that all the screening and tests conducted in pregnancy are reinforcing the idea of a ‘perfect’ and ‘normal’ human and I completely agree. However, the kind of disability that they are talking about would bring quality of life into question, and neither of them are financially set up to be able to adequately care for a child who requires constant attention and care. But they desperately want a child, and she is over 40 years old. She had been thinking for the whole pregnancy that she was lucky to be pregnant and that she probably wouldn’t be able to have another child.

Sitting and talking with two pro-choice women this afternoon, the sentiment was that, while we completely support everyone’s right to choose, sometimes you just don’t want to have to choose. This kind of abortion story, heartbreaking and messy, has been almost completely left out of the pro-choice movement, because it’s difficult. Because it’s borderline for many people and because at 9 weeks we can call something a collection of cells but after 26 weeks, those cells can, if things work out that way, be sustained by medial support and intervention. But a machine cannot bring up a child. I don’t want to have a debate about when life begins, because as far as I’m concerned, a baby needs more than itself to survive and women have to be able to have these choices. We have to trust women. But in marginalising women who make choices in these grey areas which are so open to attack by anti-choicers, we really are silencing women who desperately need support and to be included in the pro-choice movement. Pro-choice activists need to accept that these women and their stories are just as valid as an unplanned pregnancy terminated at 7 weeks.

Of course, I don’t know that this is the way my friend’s story will end, and I hope that something wonderful happens and the next test tells a different story. But the way she is feeling now, she could use the support and the stories from other women to feel that she is not alone.

*for the record, I absolutely hate this term/word but am yet to find one which adequately replaces it without being equally able-ist or inadequate. Suggestions welcome!

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